Long story short, on several tests, they (being the doctors) have had trouble tracking her pulmonary arteries. The reason for this has apparently come to light in the latest CT scan. She doesn't have a left pulmonary artery. Turns out, it is hard to find if it is not there. It also turns out to be a very rare condition, and even rarer for it to be the left pulmonary artery. We have follow up visits with really good pediatric cardiologists scheduled, and they are checking with multiple colleagues. And Lil Bit is asymptomatic, and thriving quite nicely.
Thus the "roller coaster" that the Mrs. refers to in her post.
For me, the whole adventure of having our daughter, from the craziness of dealing with infertility, to the amazing joy at her birth, from the feelings of total inadequacy in knowing how to take care of a kid to the moments of sheer grace while holding her, all of it has been an exercise in trust.
While I am having some difficulty finding the right words, I think the closest I can come is to say I am trusting that God will give us what we need to handle what we need to handle. Sometimes that is in inner courage during difficult moments. Sometimes it is the love of an amazing church community. It has shown up in the form of a Facebook community that offers stories of courage and grace, of hope and support. It comes in the form of the love of our families.
Having started this journey as an exercise in trust, now it is becoming an exercise in remembrance. My job now is to remember that this trust is well placed and, as our choir sings near the end of every choir season:
He never failed me yet!
Thank you to each one of you amazing reminders of the love of God.
